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Parent Carers

Do you have a child, or parental responsibility for a child, with special needs, a disability or life-limiting condition?  If so, you are not alone!

The Borders Carers Centre can offer dedicated one-to-one support, information, advice and a 'helping hand' through the maze of services ensuring both your rights and the rights of your children are recognised.   You can also join our Parent Carer Working Group which aims to give parent carers a voice in the planning and design of services for children with additional needs.

Contact us to arrange a Carers Support Plan to identify and support your needs.

See below for useful links to grants, holidays, respite, days out and help and advice.

​

Contact:



​Contact Andrea, the Young Adult and Parent Carer Worker 

07502 131 609 (mob)
01896 752431 (direct line)
​or by email
 
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"Having a child with additional needs is exhausting, frustrating and very wonderful.   I just wasn't coping, and felt really unsupported.  No-one was listening and then my Dr referred me to the Carers Centre.  What a lifesaver.  For all of us"   

Carer  Eyemouth

Download our Information booklets below:

Children's Services
File Size: 389 kb
File Type: pdf
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Useful Contacts
File Size: 283 kb
File Type: pdf
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Young Adult Carers
File Size: 310 kb
File Type: pdf
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Young Carers
File Size: 265 kb
File Type: pdf
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Young Carers (under 17) in The Scottish Borders are supported by Action for Children.
Rights of children with additional support needs
File Size: 2073 kb
File Type: pdf
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online_creative_resources_for_carers.pdf
File Size: 402 kb
File Type: pdf
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Online creative resources for carers.  The first section is a list of downloadable apps, and the second section is a list of website links. Both lists have been organised by artform and type of activity

Useful Links

Information/Support Available
Link
Contact provides support, advice and information for families with disabled children, no matter what their condition or disability.
https://contact.org.uk/scotland
​
Information about benefits and grants relevant to your situation.
https://www.turn2us.org.uk/
​
Legal duties in relation to your disabled child
https://www.gov.uk/help-for-disabled-child
​
The Scottish Law Centre provides free legal advice for and about children and young people.
http://www.sclc.org.uk/
​Children 1st - Parentline is for anyone caring for or concerned about a child, but it’s not just for parents – They also take calls from grandparents, uncles, aunts, family friends, neighbours and professionals.
https://www.children1st.org.uk/help-for-families/parentline-scotland/what-you-can-expect-from-parentline/
​

Local charity providing a volunteering/befriending service for socially isolated children, young people and adults with learning disabilities.
http://www.interestlink.org.uk/
​
BANG (Borders Additional Needs Group) ​for families with children with additional , complex or rare conditions,
​http://www.bordersadditionawww.bordersadditionalneeds.org/lneeds.org/
Disability Living Allowance for children
https://www.gov.uk/disability-living-allowance-children
​

GIRFEC (Getting it right for every child) is the national approach in Scotland to improving the outcomes and supporting the wellbeing of children and young people
https://www.scotborders.gov.uk/info/20054/children_and_families/597/girfec
​
Scottish Borders Children's Services Directory
https://www.scotborders.gov.uk/directory_record/1791/scottish_borders_childrens_services
Scottish Borders Council Young Carers information
https://www.scotborders.gov.uk/info/20054/children_and_families/594/young_carers

​Children's Hospices across Scotland
​https://www.chas.org.uk/
The ​UK's largest provider of specialist autism services
https://www.autism.org.uk/
​
​Child and Adolescent Mental Health Service (CAMHS)
http://www.nhsborders.scot.nhs.uk/patients-and-visitors/our-services/children-young-peoples-services-directory/child-adolescent-mental-health-services-camhs/
​
​Resolve: Additional Support for Learning independent mediation service is the largest mediation provider in Scotland.
https://childreninscotland.org.uk/our-work/services/resolve/
​
Scottish Borders Council Additional Support for Learning
https://www.scotborders.gov.uk/info/20041/support_for_pupils/456/additional_support
Stable Life provides a safe, nurturing and learning experience using the horse and its environment to help young people reach their full potential and achieve their aspirations and dreams.
http://stablelife.org.uk/about/
​The Tweeddale Rideability Group
https://www.facebook.com/TweeddaleRDA/
Talking about Tomorrow - Preparing parents in Scotland for Transition.
http://www.talkingabouttomorrow.org.uk/
Contact in Scotland - ​news,information and events for parent carers of disabled children in Scotland
https://www.facebook.com/contactinscotland/
Power of Attorney
http://www.mypowerofattorney.org.uk/
The Scottish advice service for additional support in learning.
http://enquire.org.uk/
​Lead Scotland is a charity which provides learning, befriending and helpline services for disabled people and carers.
​https://www.lead.org.uk/
National Parent Forum of Scotland
website here
Credit Action
​https://creditaction.co.uk/disability-resource-guide/
​Sight Loss
​https://sightscotland.org.uk/supportline

Grants

Type of Grant
Link
​Grants for short breaks for the carers of disabled children, young people and their families.
http://takeabreakscotland.org.uk/
​
Family Fund is the UK's largest charity providing grants for families raising disabled or seriously ill children and young people.
https://www.familyfund.org.uk/
​
​The Boparan Charitable Trust 
http://www.theboparancharitabletrust.com/our-stories/
​

John Watson Trust has grants for young people under 21 who have a physical and/or learning disability and who are socially disadvantaged.
​Grants for educational purposes such as school equipment, bus passes, school trips (School needs to apply)
http://www.wssociety.co.uk/charities/jwt/
Marvellous Family Grants are for families facing financial hardship while caring for a child with a serious illness.
​http://www.roalddahl.com/charity/family-grants

Holidays/Respite

Type
Link
​Calvert Trust Keilder - Holidays, days out and experiences for disabled people, their families and carers
http://www.calvert-trust.org.uk/kielder/calvert-trust-kielder-families-groups-individuals
​
​The Daisy Chain Programme - Respite Holiday for children with special needs and their families.  Can also accommodate families who have lost a child and need a peaceful break.
https://www.kensingtonfoundation.com/get-involved
​

​Holidays for children with disabilities and special needs.
https://www.newmantrust.org/
​

Respite ​care for children who require high levels of supervision due to their complexities of needs.
​https://www.facebook.com/sleepyheadsrespite/
​Local respite for children with additional needs and disabilities.
​https://www.aberlour.org.uk/services/options-borders/
Music Project for all
https://www.nomadbeat.com/breaking-sound-barriers
Shared Care - Accessible short breaks and accommodation
https://www.sharedcarescotland.org.uk/
​
Salvation Army - Access to a caravan holiday at Southerness Holiday Park for carers @ £30 per week.  See here for more details, then contact us to make a referral on your behalf.  Please note these holidays are taken up well in advance, and you may need to book a year before you wish to travel.
​project/www.sharedcarescotland.org.uk/directory/4676/the-salvation-army-holiday-project/
Merlin's Magic Wand children's charity
https://www.merlinsmagicwand.org/
The Lin Berwick Trust - holiday homes for disabled people and their families
https://www.thelinberwicktrust.org.uk/scotland/denis-duncan-disabled-holiday-cottage-scotland/
​
Summer Holiday Camps in the Scottish Borders for P1 to P7 aged children
https://www.liveborders.org.uk/play/activity-camp/
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​Please also see our Respitality page for more information about breaks, gifts and time out for you.

National Discounts for carers

Type of Discount
Further information
​Cinema CEA card ​An ​annual card you pay for that gets a carer a free ticket when they accompany the person they care for.
​​https://www.ceacard.co.uk/
​English Heritage has free admission for carers who are supporting the person they care for during their visit.
http://www.english-heritage.org.uk/
​
​Max card gives free admission to attractions for looked after children, children with complex needs, their friends and family.
​https://www.disability-grants.org/national-disability-discounts-days-out.html
​Merlin annual pass has a complimentary pass for carers.
​https://www.merlinannualpass.co.uk/
​
National Trust has an ‘Access for all Admit One Card’ that allows you free entry if you are with the person you care for. ​
​https://www.nationaltrust.org.uk/features/access-for-everyone
​
​​Carers travel free If the person you care for has a National Entitlement Card and they need your help when they travel by bus then you will be able to travel with them for free.
https://www.turn2us.org.uk/Benefit-guides/Travel-costs-People-with-disabilities-and-carers/Carers#guide-content
​
Further helpful information for parent carers/self help for young people
See here for information about free specialist equipment, such as cots, beds, walking & standing aids etc.
Issue
Helpful websites
Anxiety and sleep issues
moodjuice.scot.nhs.uk.anxiety.asp
anxietyuk.org.uk
stressandanxietyinteenagers.com
therapistaid.com
tiredout.org.uk/sleeptips/
thechildrenssleepcharity.org.uk/
https://benefitsofsleep.org/
Bereavement
hopeagain.org.uk
smartgriefguide.co.uk
littlewebsite.org
childbeavement.org.uk
moodjuice.scot.nhs.uk/bereavement.asp
Depression or Low Mood
moodjuice.scot.nhs.uk/depression.asp
childline.org.uk
nhs.uk/Conditions/stress-anxiety-depression
therapistaid.com
Obsessive Compulsive Disorder
ocdyouth.ipo.kcl.ac.uk
ocduk.org
moodjuice.scot.nhs.uk/obsessioncompulsion.asp
Self harming behaviour
selfharm.co.uk
mind.org.uk
selfinjurysupport.org.uk
therapistaid.com​
See here for a useful book

Behaviour problems
rcpsych.ac.uk/healthadvice/parentsandyouthinfo/parentscarers/behaviouralproblems.aspx
​youngminds.org.uk
therapistaid.com/therapy-worksheets/dbt/adolescentsmoodjuice.scot.nhs.uk/Anger.asp
Eating disorder
b-eat.co.uk​
Family relationship difficulties
relationships-scotland.org.uk

mindreel.org.uk
Advice & info for families
minded.org.uk/families/index.html#/
​Pathalogical Demand Avoidance
https://www.pdasociety.org.uk/
​https://www.autism.org.uk/about/what-is/pda.aspx
UNRC (UN Convention on the Rights of the Child) summary
File Size: 75 kb
File Type: pdf
Download File

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The Borders Carers Centre, Brewerybrig, Low Buckholmside, Galashiels TD1 1RT    01896 752431
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Jeane Freeman, The Minister for Social Security, Scotland, visited the Carers Centre in October 2017 to hear carers opinions on the changes to how benefits are made in Scotland.  Jeane Freeman can be contacted directly at Jeane.Freeman.msp@parliament.scot

You can also watch a video featuring Jeane answering carers questions directly.

The Borders Carers Centre, Brewerybrig, Low Buckholmside, Galashiels TD1 1RT    01896 752431
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